| Nov 30, 2021 | SURF | Irene Nooren | - SURF currently engaging as key IT partner in the Dutch national eHealth initiative, https://health-ri.nl focusing
on health data sharing and implementing new data-based services for health. Goals of Health-RI are:
- Build an integrated health data research infrastructure accessible for researchers, citizens and care providers.
- Facilitate and foster the optimal use of knowledge, tools, facilities, health data and samples to enable a learning healthcare system and accelerate sustainable and affordable personalized medicine and health.
- SURF is helping with. procurement and governance too.
- Current main focus for SURF is more on the secondary use of health data: share of medical data to support research
- An archiitecture is being defined and possible approaches to data sharing being evaluated (centralized vs decentralized), the role to be played in the model by the individual health institution
- Data Sovereignty is a key feature of SURF strategy
- With respect to the required IT sevices for health, both acces to computing resources and storage are relevant. However there is an acknowledgement that emphasis should go above all on Storage. Storage needs, options, available services to support Health Research.
- Computing will become also increasingly. important in relation to AI
- For primary usage of Health data, interoperability is still the main issue to solve. Current focus necessarily on secondary usage of Health data for medical Research. At this level interoperability is (a bit) less of an issue.
- About what can be done of useful with other NRENs via the eHealth task force:
- Since other countries are also in the process of defining the IT architecturre of their national eHealth infrastructures, it would be good to share plans and ideas across NRENs - given the main constraints and requirements are similar
- Liaising with the EC Commission and provide information to all NRENs about new regulations, communications, strategic plans and funding opportunities for NRENs like nel calls frorm the main EU Programmes on eHealth. (EU4Health, HorizonEurope...etc) - Focus is on secondary usage of Health data for research, also in relation to key Life Science and Health Research Infrastructures, starting from EOSC-Life.
- Also getting to know/being able to contribute to the plans for eHealth. in GN5 would be interesting and useful.
- IRODS for federated storage is an interesting option, SURF would be interested to gather forces on this topic, share experiences, also, possibly, through the. organisation of a dedicated event.
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Dec
15,
2021 | CESNET | Rdovan Igliar | - Our unit deals with services and relations to users: basically, everything towards users: CESNET connects Universities with also medicine faculties, UNIs, and all big hospitals: regional hospitals, some of the municipal hospitals: research and faculty are one. We have research hospitals. hospitals are regular users for us: we provide Faculty hospitals (teaching and research hospitals) and also regional/municipal hospitals.Hospitals are regular users of e-infrastructure - CESNET provides them with connectivity, storage, AAI, some some computing; services like AAI-a-a-S: basically we provide to Health users . Basically the full stack stack of our e-infrastructure services. We are CESNET is also leading activities related too related to COVID, security, cyberattacks.
- hSOC
- CESNET has established Hospitals
We established Hospitals - SOC, hSOC: Security operations team: a
lot We have - We also cooperate with ministry of Health on digitalization of health: we do not deal with medical records directly: we are more interested in how to interchange Health data: how data should be interoperable and interchangeable; how to use Identity Management (IdM) too - For the ministry, we are consultants, we do not really do it ourself. The ministry does it: There is a national ministry strategy on eHealth : we are both consultants and members.
- communitya
- community a set of of working groups. We are involved mostly in the TECH and Emergency working groups of HSOC. Topics these group are working on are: how to do disaster recovery, also human resources in
digitalization; emergency and tech WGs are our one'sWe - cybersecurity and digitalization.
- CESNET also established a private network: HSOC VRF
: They their - own VRF in CESNET so that hospitals can
interchange - eHealthThere a eHealth initiative, but other people are involved in the National eHealth initiative. ( It started 2
- ministry strategy on eHealth (national eHealth initiative) - started several weeks ago, very recently) : Coordinate by the
ministry - Ministry of health; a new
deputy appointed - deputy /Mr. Blaha/ appointed appx. 1 month ago for digitalization of eHealth; they are discussing the future calls, financing sources and the strategies - now the ministry is working on the strategy document
. Milan Blaha from the ministry- . They are working on the strategy document 2021-2025 several goals…
.responsible…resources…- .responsibilities…resources…
- CESNET is providing consultations on interoperability, standards. CESNET is not directly involved in topic of medical records. However there is ongoing discussion regarding interoperability (FAIR) of Medical data between Research infrastructures and Research hospitals, how to use Identity Management (IdM).
- Another part of activities is: government has a body called
research and - Research and education board, responsible to head of the government - they discuss how Health should be working more closely
with - with research - research in medical areas, there are some research infras (
BB-MRI- BBMRI, BioImaging, ELIXIR ( there are around 7-10 Health ResInfras in Czech republic)
: This second pillar of activities deals with how these res infras should be linked to health- . There are 2 tracks of activities and they are discussing now how these tracks should combine.
Health - Research funded by project - discussion how Health Sector and ResInfras
and to - should share data too ! - For example: Some genetic research, they do does not combine the data from the hospitals: research people do not have data from hospitals
- also : how to share dataResearch project, hospitals funded by - public health insurance - how to share data between these 2 branches of
activities - we in CESNET are is leading the national EOSC initiative, we are the national coordinator of EOSC: there is a WG related to Health in the EOSC national node
- Services - connectivity, data storage services (du.cesnet.cz), sensitive cloud
- Projects - interoperability od data, i.e. https://www.cesnet.cz/projects/data-infrastructure-capacity-for-eosc/?lang=en
- not related to Health in particular
What would be useful to do with other NRENs ? - In General knowledge sharing, best practice sharing ;There are similar activities in all states, no rocket science. National relations mainly. One thing is to share best practices and knowledge
- Also , EU calls for Health: EU funding opportunities and strategies - regulations / communications - monitor those, to follow those, info sent to the list, : forward this info from the list, this is very interesting - We think EU and national strategies should interact (Our ministry of health was not aware of the initiative) - eHealth is not fully dealth with - Ministry of health did start the Competence Centre on Health
- National Competence centre - established by the ministry -INFO ON WHAT GOES ON AT EU LEVEL IN GENERAL
- Also: within the community, we work with guys providing NIX-ZD - They are building eHealth eID - And interchange for medical data. : Cross-border medicine. -This is led by one of the municipalities, a region. several hospitals involved. - But it is actually under the CEF programme of EU: buidling a National eHealth centre - we provide connectivity and also STORAGE for them - NIX-ZD are not hosted in the ministry -hosted in Jihlava
We do provide data storage services We provide core infra storage for du.cesnet.cz certification ISO27001 certification but for the storing of data are certifications are required Support on the certification process - CESNET has at the moment ISO 27001 certification in place. Potentionally a support for certification process. Also to learn from others how certification for health infrastructure will be good to know.
we are CESNET is building a new service called sensitive cloud sensitive cloud - sensitive cloud (based on Openstack) in future will be the be the potentionally also a service to interchange Research and Hospital health data Computing but mainly about storage so we are preparing this service, we know how to do we use ELIXIR AAI not EOSC-Life AAI migrated EOSC and Data sets are 2 parts of activities 2023-2029 3 areas funded : - infrastructures
- data repositories to store in FAIR principles
- EOSC to put things together
It seems it is all about the EOSC but in reality there are 3 funding streams: Infras data. CESNET do support Elixir AAI, also working on EOSC-Life. Certifications in relation to might be Sensible in future.
Future funding 2023 - 2029 will be divided into: - Infrastructures
- Data sets and repositories to store in FAIR principles
Data sets- And integration of all this under EOSC
.Certifications in relations to Sensible - https://www.e-infra.cz/eosc
irods: DICE foor for EOSC: about interoperability of data storages not related to Health in particular https://www.cesnet.cz/projects/data-infrastructure-capacity-for-eosc/?lang=en CESNET is at least for now not specifically interested in irods. Certifications are really important for us, also in relation to sensitive cloud services (based on openstack) EU funding opportunities and strategies - regulations / communications - No knowledge regarding interest in iRods
About a shortlist of what is interesting for CESNET: (final wrap up): - STORAGE YES
- FAIR principles in eHealth
- eIDAS services which are seekd seek by some hospitals
- Data Sovereignty is also a key for us
- share plans and ideas
- linking health systems together (cross-border medicine)
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